Almost a month ago, Landon had his Annual Review meeting, which is his yearly meeting to discuss progress/programs. As I sat down at it, I was sort of annoyed, because his teachers were not there, but the support teacher was. I kind of wanted someone who worked right with him to be there with me, for me. As we began reviewing everything, I kept hearing the words, "significant progress." Landon has made significant progress in this, in that, in everything. Everything EXCEPT speech. But still, progress is progress. I sat there and they asked me what I thought, and all I could really say was "speech is everything to me. Without speech, I don't know where he can go, what he can do. He has to develop speech." Someone said sometimes he is stubborn and does not want to say something. I immediately stood up for my son, and said, he wants to; he just can't. I get very defensive about my baby. I kept thinking what is significant progress to me, do I use those words at school with kids who are still functioning years behind, and maybe I do. I do know that since starting this journey, I am very much more understanding and patient with my students, parents, stupid tests I have to give. I have sat at meetings and said to a parent, "This number is really nothing, but I have to tell you xyz." My favorite boy, Alejandro was nonverbal in K. He is now speaking in long sentences. He is still on the spectrum. He is also a joy. I would be so proud if he was my son. I love him so much. He is up for re-eval. He won't do well on the testing because he doesn't always think in a standardized way; he just doesn't. He also gets off topic all the time. He still has made significant progress. For me, I have been on this road and through this. I had Landon signed up for a typical preschool, then maybe ok, maybe he will need teacher services, ok he is going to a special needs prechool, finally, for next year, he will have a 1:1 aide. It is a process. Maybe I have made significant progress in accepting this, but it does not feel like it. Significant progress for me is no more IEP. That is too lofty of a goal. I just want him to talk. I could care less about anything else.
So that is that, significant progress. I am proud of him, and hopefully the next big progress is speech. Iep finalized. Summer school starts July 6 and he is going all day next year to preschool. He will be exhausted. At these meetings and in dealing with teachers, etc, best thing to remember is: You are the expert on your child. I know Landon more than anyone, and no one will tell me differently. He has made nice progress and he is capable of so much. Nobody better sell him short.