Day one million
The process to improving a child with CAS' speech is long. It's not adding words first, but instead sounds and imitation. It's frustrating and takes forever.
Sunday, November 3, 2013
Monday, October 28, 2013
decisions
Landon is getting OT- 2X PER WEEK, SPEECH 2X per week, and Teacher 1x per week.
Everything feels very hodge podge. He is at daycare, they come pick him up, work with him, drop him off, no communication to teacher. He is making SOME progress, but it is slow, as I guess i should expect with apraxia. His play skills do not seem that different from his peers, except that he is not talking. He is also very quiet at school :( Alex went to observe today and he was not impressed. He said the OT is horrible. The teacher brought an actual pumpkin for him to put pieces in and he was not interested, and that is all she had. Landon and all the kids pretty much play by themselves and there's not a lot of input going on.
I called the service coordinator last week about the OT and there is no one else available, but there is a spot open at Exploring your world at Enable. It is a program for kids getting services and also "typical" children. It is monday/wed/fri 830-11 and he could get his therapy there. He could also get Erin back. The question is- do I quit my job, take him to that and then stay home with the boys the other two days?
Do I see if Alex's dad can transport him? (big responsibility) Do I put him on a bus? (don't think so). Will that help or is that just more change? I don't know, but the situation right now is not working. Boo
Everything feels very hodge podge. He is at daycare, they come pick him up, work with him, drop him off, no communication to teacher. He is making SOME progress, but it is slow, as I guess i should expect with apraxia. His play skills do not seem that different from his peers, except that he is not talking. He is also very quiet at school :( Alex went to observe today and he was not impressed. He said the OT is horrible. The teacher brought an actual pumpkin for him to put pieces in and he was not interested, and that is all she had. Landon and all the kids pretty much play by themselves and there's not a lot of input going on.
I called the service coordinator last week about the OT and there is no one else available, but there is a spot open at Exploring your world at Enable. It is a program for kids getting services and also "typical" children. It is monday/wed/fri 830-11 and he could get his therapy there. He could also get Erin back. The question is- do I quit my job, take him to that and then stay home with the boys the other two days?
Do I see if Alex's dad can transport him? (big responsibility) Do I put him on a bus? (don't think so). Will that help or is that just more change? I don't know, but the situation right now is not working. Boo
Wednesday, October 23, 2013
typical
I spent the morning at Landon's daycare, well from 10am-1130am. It is not a bad place. My child is not typical right now. It is hard to say and harder to feel. He is not doing what all the other boys are doing, and it must be sad for him. He was in OT when I arrived and the OT is not very positive or a happy person. Maybe happy, but just like "oh, not his day..." I think, what a waste. Then he got his diaper changed for his walk. I walked with him. He just held onto the rope and kept walking. Kinda boring. Blah blah. it was cold. Got back in. The teacher pulled out 4 books, completely unrelated and read them. He listened for 2, then walked away and got a car. The kids are naming colors, shapes, their names, their parents' names, etc. So crazy. I know Landon is smart, but he can give up, because it is so hard for him.
It's hard. I guess that is the message.
It's hard. I guess that is the message.
Wednesday, October 16, 2013
1st entry
I decided to start this blog as a way to air my own feelings. Landon is one of my sweet joys, my baby boy. He is 24 months old, just turned 2 and precious as they come. Those sweet green eyes, big smile, soft little hands, and the way I feel like I "get him" is what we all need in this world. He is heading towards a diagnosis of Apraxia of speech accompanied with some form of Sensory Processing Disorder. Half the time, I feel sick, just worried what this all means and what is coming, and then the other part of the time, I trust God, I know he will be fine, and I see him for who he is: PERFECT.
I first asked about apraxia when Landon was about 13 months old. I had him in EI for PT, OT, and feeding, and everyone kept saying he has motor planning trouble. In grad school, apraxia was barely covered, but all I remembered was learning that it is a motor planning problem, so I asked about that, but everyone said no, they are not related. Then it was about February, and words were hard for him. He was 17 months and had a good amount of words, but not consistent. He would stand up, say done in the bath, and then it would be gone for weeks. I was worried about this, but he was little. At 18 months, he should have been imitating and he was not with any consistency, so I paid a private SLP for about 10 weeks. He picked up some new words and sounds with him and she was not sure he had apraxia. In my heart, though, I was saying yes, yes, yes, he does. I took him to a specialist in July. She said it is definitely sensory motor and to have him looked at by an OT. He had just been dismissed from OT, but I took him. This lady talked all about sensory processing, saying motor planning is actually sensory processing, that his nervous system isn't wired like ours.
On July 19, I referred him back to EI, and he is now getting teacher services- 1x per week, speech 2x, and OT 2x. Everyone is saying apraxia and SPD. The SPD manifests in whatever he is doing to the book, whenever he walked around the cars, throwing himself on the floor, wanting to be touched on his terms, etc. He is looking for some kind of input, but it varies and it changes. Socially, he does great. He is happy and loves interacting, but it is easier when it is a game he understands- playground, chase, peekaboo, etc. He doesn't have the words to play with all his buddies the way he wants to yet, and apparently, he knows it. I guess he gets frustrated a lot. I feel horrible for him. Somedays, I just want to cry and cry, but I have a job and my sweet little Logan too. Landon is gaining more words and more sounds and I know he will be ok. I will be there in his corner no matter what. He has made me a better person, and not everything comes easy to everyone, but the struggles are part of the joys in life.
He is not a severe case, and I pray it is mild, since he already has words and sounds and many do not at his age.
I love that little boy. Please keep him in your prayers,
Kim
I first asked about apraxia when Landon was about 13 months old. I had him in EI for PT, OT, and feeding, and everyone kept saying he has motor planning trouble. In grad school, apraxia was barely covered, but all I remembered was learning that it is a motor planning problem, so I asked about that, but everyone said no, they are not related. Then it was about February, and words were hard for him. He was 17 months and had a good amount of words, but not consistent. He would stand up, say done in the bath, and then it would be gone for weeks. I was worried about this, but he was little. At 18 months, he should have been imitating and he was not with any consistency, so I paid a private SLP for about 10 weeks. He picked up some new words and sounds with him and she was not sure he had apraxia. In my heart, though, I was saying yes, yes, yes, he does. I took him to a specialist in July. She said it is definitely sensory motor and to have him looked at by an OT. He had just been dismissed from OT, but I took him. This lady talked all about sensory processing, saying motor planning is actually sensory processing, that his nervous system isn't wired like ours.
On July 19, I referred him back to EI, and he is now getting teacher services- 1x per week, speech 2x, and OT 2x. Everyone is saying apraxia and SPD. The SPD manifests in whatever he is doing to the book, whenever he walked around the cars, throwing himself on the floor, wanting to be touched on his terms, etc. He is looking for some kind of input, but it varies and it changes. Socially, he does great. He is happy and loves interacting, but it is easier when it is a game he understands- playground, chase, peekaboo, etc. He doesn't have the words to play with all his buddies the way he wants to yet, and apparently, he knows it. I guess he gets frustrated a lot. I feel horrible for him. Somedays, I just want to cry and cry, but I have a job and my sweet little Logan too. Landon is gaining more words and more sounds and I know he will be ok. I will be there in his corner no matter what. He has made me a better person, and not everything comes easy to everyone, but the struggles are part of the joys in life.
He is not a severe case, and I pray it is mild, since he already has words and sounds and many do not at his age.
I love that little boy. Please keep him in your prayers,
Kim
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